Article:
My Quantified Self, my FitBit and I. The Polymorphic Concept of Health Data and the Sharer’s Dilemma

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dc.creatorKaranasiou, Argyro P.
dc.creatorKang, Sharanjit
dc.date.accessioned2018-09-25T15:11:53Z
dc.date.available2018-09-25T15:11:53Z
dc.date.issued2016
dc.description.abstractThe rise of wearable tech, namely devices with sensors measuring the user’s daily activities and habits seems to be suggesting a paradox in the post-Snowden era: On one hand, it is generally accepted that unauthorised use, storage and processing of the user’s private data by the state directly clashes with our fundamental rights for privacy; on the other, the user seems to be keen on self-recording and storing one’s own data by willingly using sensors, enabling him to learn more about one’s habits, general health status or even personality. In the era of wearable tech we seem to be accepting that measuring data is not a privacy infringement but a self-surveillance exercise in a quest to get to know ourselves better, most acute to exercising one’s right to free expression. Yet, how is this addressed in legal terms? The focal point for this paper is to address the nascent phenomenon of users actively partaking in the QS movement by wilfully sharing health related datasets. Part 1 notes the transition from the “right to be let alone” to the right to own one’s data as the underlying rational for QS: is it a form of expression regarding a tradable commodity in a free market or a matter of greater public importance? Part 2 dissects the dilemma in sharing health data for public health and/or research purposes exceeding the strict limits of private sphere. The unfortunate case of Google Health, the unconstitutional purchase of Iceland’s national datasets by deCODE and the mishap of the Care.data are studied to shed light to the many faces of our Quantified Selves: Is the current legislative approach fit for facilitating the QS movement, as a type of self-expression? The paper critically examines self-measurement technologies from a legal perspective and calls for urgent reforms in self-measured data protection.en
dc.identifier.doi10.25969/mediarep/891
dc.identifier.urihttp://digicults.org/files/2016/03/Argyro-P.-Karanasiou-and-Sharanjit-Kang_2016_My-fitbit-and-I.pdf
dc.identifier.urihttps://mediarep.org/handle/doc/3156
dc.languageeng
dc.publishertranscript
dc.publisher.placeBielefeld
dc.relation.isPartOfissn:2364-2114
dc.relation.ispartofseriesDigital Culture & Society
dc.rightsCreative Commons Attribution Non Commercial No Derivatives 4.0 Generic
dc.rights.urihttps://creativecommons.org/licenses/by-nc-nd/4.0
dc.subjectSelbstüberwachungde
dc.subjectÜberwachungde
dc.subjectPrivatsphärede
dc.subjectself-monitoringen
dc.subjectsurveillanceen
dc.subjectprivacyen
dc.subject.ddcddc:323
dc.titleMy Quantified Self, my FitBit and I. The Polymorphic Concept of Health Data and the Sharer’s Dilemmade
dc.typearticle
dc.type.statuspublishedVersion
dcterms.bibliographicCitationKaranasiou, Argyro P.; Kang, Sharanjit (2016): My Quantified Self, my FitBit and I. In: Digital Culture & Society 2 (1), S. 123–142. DOI: 10.14361/dcs-2016-0109. DOI: http://dx.doi.org/10.25969/mediarep/891.
dspace.entity.typeArticleen
local.coverpage2021-05-29T02:30:42
local.identifier.firstpublishedhttp://digicults.org/files/2016/03/Argyro-P.-Karanasiou-and-Sharanjit-Kang_2016_My-fitbit-and-I.pdf
local.source.epage142
local.source.issue1
local.source.spage123
local.source.volume2
local.subject.gndhttps://d-nb.info/gnd/4123980-5
local.subject.gndhttps://d-nb.info/gnd/4134175-2
local.subject.gndhttps://d-nb.info/gnd/4552084-7
local.subject.wikidatahttps://www.wikidata.org/wiki/Q7448152
local.subject.wikidatahttps://www.wikidata.org/wiki/Q334401
local.subject.wikidatahttps://www.wikidata.org/wiki/Q188728

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